Dementia Series Review
This film introduces Clive and Pauline Jenkins who live with dementia. Their daughter Kimberley is a former BBC Producer and has collaborated with academic, health and social care partners in Wales to create a series of ten films. Their purpose is to support carers to better understand what dementia looks and feels like. Experienced carers share their insights into observed behaviours and what works and doesn’t work to support those that they look after. Health and social care professionals share their knowledge and offer advice. Academics help us understand what we know about what is going on in the brain and why activities that were once so familiar can become so challenging.
dementia, lived-experience, review of series, fixed cameras,
Understanding Dementia
What is dementia? Welcome to the home of Clive and Pauline struggling to make sense of their world as dementia claims their minds. With humour and pathos, we join this couple in their 80s who agree to share their experiences so that we can better understand how to support them to live as well as possible with dementia. We meet other carers who look after family members living with dementia and the carers working with Clive and Pauline. Their insights are complemented by experts who provide insights into what we are seeing.
what is dementia, lived-experience, retinal-screening technology, information,
Dementia & Safety
Does it really matter if your dad uses the toilet brush to wash up the dishes? Our team of experts discuss the limits of independent living and when 24/7 care becomes inevitable. We look at strategies for maintaining skills as long as possible.
dementia, lived-experience,safety, danger,
Truth
This film raises a lot of questions about perception, feelings and how they are expressed. Dementia Trainer and Positive Approach to Care certified consultant Nick Johnson gives good advice on how to respond to someone who is upset. Professors Andrea Tales and Jeremy Tree from Swansea University deliver insights into what is going on in the brain and talk about the differences between working memory and those memories laid down many years ago.
dementia, lived-experience, truth, perception,
Anger
dementia, lived-experience, anger, advice,
Visual Perception
dementia, lived-experience,visual disturbance, patterns,
Process
dementia, lived-experience,process, advice,
Anxiety
dementia, lived-experience, anxiety, advice,
Sundowning
dementia, lived-experience, sun-downing, advice,
Eating & Drinking
dementia, lived-experience, eating, drinking,
What's the Point?
dementia, lived-experience,support, quality of life,
A First Experiment
This was our first attempt to explore what it means to live with dementia. A team from the Assistive Technologies Innovation Centre (ATiC) which is part of the University of Wales Trinity St David, bring their retinal screening tech to show my parents. What happens next sets us on our journey to deliver a new way of understanding what it might be like to live with dementia.
dementia, lived-experience,retinal screening, technology,
The Culture of Care - Somali Community
Thinking about the individual: Taff Housing Association and Red Sea House worked with the PocketMedic team to look at life lived with dementia in a residential setting and the importance of person-centered care. This film captures our initial findings in collaboration with the Assistive Technologies Innovation Centre (University of Wales Trinity St David). Our first collaboration led to a series of films to support carers to help people to live well with dementia in a home setting. This first series won a Green Gown Award for Benefitting Society in November 2022. The ambition of the team is to create a second series of films to support carers to provide more person-centred care in residential settings from hospital wards to dementia care homes. This film marks the beginning of this journey.
dementia, lived-experience, somali, Red Sea House,